I knew that today was coming for some time, after all I am the one that made the appointment for JM. He went to see a developmental ped today, first time in two years. We were going for a second opinion, looking for answers to things that well just make us scratch our head.
I knew going in what I was going to be told, but hearing it and knowing it is two completely different things. I have not had the chance to talk to many people about this, in fact just my husband and immediate family. So bear with me.
For some time we have had our doubts that John Michael only had sensory issues, he just seems to get so fixated on things, can not let things go, gets so upset and can not calm himself down. Discipline that works for the other two does not work for him, in fact it makes things worse. He cried the other day for two hours because I did not have twizzlers in the house. Yes two hours, nothing would get his mind off of it.
So I was thinking Aspergers, PDD-NOS, another words that he was on the spectrum. So while I knew this I did not know this. Today I was told this by two different doctors and a ABA therapist. SO I guess this means I have no choice but to accept it and to move on from here. To get him even more therapy and to make certain that I am there to fight for him every step of the way.
Our journey has changed today, changed a good deal. Our road down this life is going to be different, yet he is still the same child tonight that he was last night. I just hugged him tight, took him to dinner and got him ice cream.. Something special for my little man.
The next step, we are going to have the other two evaluated as well. I do not think they have aspergers, that they are simply sensory, but the doctor wants to test them and do genetic testing. The Marcus institute is one of the leading researching institutes for Autism and Aspergers, they are currently doing a study comparing siblings, seeing how they are triplets, they are a perfect fit for the study. This means that we will get some therapies for free.. (thank goodness..)
Thank you for your continued prayers and happy thoughts.
These next few days may be hard on me and well the rest of the family. Any advice or ideas will be greatly appreciated.